Effie Parks(@OnceUponAGene):This beautiful 7-year-old girl is part of our rare disease community. She lives with CASK syndrome and was critically injured in the horrific shooting at Silver Rail Elementary School in Bend, Oregon. She is currently in the hospital fighting for her life. Her family is facing an unimaginable situation and needs support right now. If you’re able, please consider donating to help them through this time.

Effie Parks

@OnceUponAGene

Rare Disease Advocate | Award Winning Podcaster | Speaker | Captain Connection | RareMama to my sweet, Ford, who lives with #CTNNB1# 🦓

参加 November 2018

4K フォロー中 6.7K ファン

Effie Parks@OnceUponAGene

2026.10.17 03:06

This beautiful 7-year-old girl is part of our rare disease community. She lives with CASK syndrome and was critically injured in the horrific shooting at Silver Rail Elementary School in Bend, Oregon. She is currently in the hospital fighting for her life. Her family is facing an unimaginable situation and needs support right now. If you’re able, please consider donating to help them through this time.