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Just added myself to the twitter directory under: #uniondale_ny# #notforprofit# #autism# #veterans# #specialneeds# #charity#
Some dreams don’t disappear. They just get rewritten by the people who need you more. I spent years of my youth chasing a life as a guitarist. Fingerstyle was my passion. I put in the hours, earned respect for the craft, and thought music would be what my life revolved around. Then my daughter Madeline was born, and everything changed. She’s 13 now. She’s had seizures since she was six months old. She’s non-verbal, and her development has been severely delayed. I remember crying the first time she walked... she was eight. I wasn’t sure she ever would. I still have this recurring dream where I hear her say “I love you.” Most people take those words for granted. I still hope to hear them one day. In the meantime she shows me in her own way. She’ll sit next to me, grab my hand, give me big wet kisses on the cheek, and laugh. Those moments are everything. Early on, my wife and I had to make a hard decision about our lives and hers. Madeline needs care around the clock...lifting, bathing, feeding, managing seizures, everything. It takes a tremendous amount of physical strength and constant presence. My wife had the opportunity to become a special education teacher. We decided she would be the one to work, and I would stay home to care for Madeline. It wasn’t an easy choice. It meant one income, giving up the career path I thought I’d have, and accepting that our roles would look very different from what most people expect. We believed it was the best way to give Madeline what she needs and still provide for our other three kids. Looking back, it was the right decision for our family, even if the cost has been high. The truth is, this life is beautiful and brutal at the same time. I’ve been changing diapers for 13 years straight with no end in sight. With only one of us able to work, the financial strain has been constant. I’ve given up meals so my family could eat. I’ve set aside the life I thought I was building so I could be present for the one I actually have. I’m not perfect. I’m tired. I’m scared about the future... about who will care for Madeline when I’m gone, about how we’ll keep everything together. I don’t always have answers. I’ve learned to accept the tears that come with this life. Some things are simply outside our control. What we lack in money we try to make up for in love. My wife and I have given everything we have to give. Right now, though, the financial weight has become too much. We’re asking for help so we can build a little more security for our family. If you’ve ever had to trade one dream for another, or if you’ve ever made a hard decision about who stays home so someone else can be cared for, you understand. We’re not looking for a handout. We’re trying to keep going for the people who need us. If you’re able and willing to support us, I’d be deeply grateful. Cash App: $CarlosTrujilloGuitar Venmo: @Carlos_Trujillo_Guitar Thank you for reading. It means more than I can say. #SpecialNeeds# #Christianity# #prayer#
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Special needs girl, 7, dies in possible freak seat belt accident on school bus
Our new Special Needs Articles are out now. Five short, research‑informed pieces designed to help you understand and support children with additional needs with confidence and care. Go take a look.
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Mom of special needs child hauled off in handcuffs at Jersey City school board meeting - as mayor criticizes arrest
Florida substitute teacher busted for allegedly kicking special needs student: 'Now we're square'
ALERT: School psychologist who primarily worked with special-needs kids was sentenced after Instagram notified police that he had uploaded child p*rnography. Dr. Robert Lee Turner, 64, was a Miami-Dade County Public Schools psychologist for special-needs children who “tend to be the most vulnerable.” Instagram notified the police, and after investigators checked Turner's phone, they found multiple videos involving children from 8 to 16 years old. Turner's defense attorneys argued that his accounts had been hacked and that he should receive leniency because he has had “65 years of good behavior.” Judge Cristina Miranda sentenced Turner to 30 years in prison and 5 years of probation as a registered s*x offender.
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Queens College soccer coach bringing the beautiful game to special needs kids
Murder-suicide NJ dad moved family to Princeton for "special-needs" daughter, then sued realtor over tainted mansion
Mamdani mourns NYC thief accused of murdering man with special needs