Research brings hope, but access to research opportunities remains a challenge for people living with PSC. Hear from Kerrie, President of PSC Support Australia, who highlights the challenges of securing research funding in an extremely competitive environment and the lack of clinical trial opportunities currently available to PSC patients in Australia. 💬 Her message reminds us that advancing PSC research requires sustained investment, international collaboration and equitable access to clinical trials. Every patient, regardless of where they live, deserves the opportunity to benefit from scientific progress. 🌍 Different countries, shared challenges, one global voice calling for more research and better treatment options for PSC. #PSCGlobalDay2026# #PSCawareness# #PSCResearch# #ClinicalTrials# #PatientAdvocacy# #ELPA#

A Seat at the Table Is Not Enough. Patients Must Be Heard. At #UEGWeek2026# in Barcelona, Marko Korenjak, President of the European Liver Patients’ Association (#ELPA#), delivered a powerful message at the European Alcohol Policy Alliance (#EHAA#) session. Being in the room is not the same as being heard.” Meaningful patient involvement means more than participation. It requires stigma-free dialogue, early engagement, genuine listening and accountability — ensuring that patient experiences shape real decisions. From alcohol-related harm and liver disease prevention to research and public health policy, lived experience must become meaningful evidence that drives change. A seat at the table is only the beginning. The real impact comes when patients' voices change decisions. #ELPA# #UEGWeek2026# #PatientAdvocacy# #PatientVoice# #LiverHealth# #AlcoholPolicy# #PatientInvolvement# #Prevention# @UEGJournal

A leading patient advocacy group is calling on the Albanese government to delay the implementation of their 60-day drug dispensing reform, citing concern for community pharmacies.

🗳️ BEING A KIDNEYVOTER™ DOESN'T END ON ELECTION DAY! YOUR VOICE MATTERS 365 DAYS A YEAR! 💚 Stay informed, engage with elected officials, & advocate for patient-centered kidney policies. Election Day is 1 day. Patient advocacy is EVERY day! Learn more:

📍 IOWA – TODAY IS YOUR DAY! 🗳️ 🎥 AAKP Ambassador Adam Akers highlights the importance of kidney patient advocacy and reminds us to keep kidney health issues on the radar of elected officials by VOTING! 🔗 Register to vote and check your status here: