Research brings hope, but access to research opportunities remains a challenge for people living with PSC. Hear from Kerrie, President of PSC Support Australia, who highlights the challenges of securing research funding in an extremely competitive environment and the lack of clinical trial opportunities currently available to PSC patients in Australia. 💬 Her message reminds us that advancing PSC research requires sustained investment, international collaboration and equitable access to clinical trials. Every patient, regardless of where they live, deserves the opportunity to benefit from scientific progress. 🌍 Different countries, shared challenges, one global voice calling for more research and better treatment options for PSC. #PSCGlobalDay2026# #PSCawareness# #PSCResearch# #ClinicalTrials# #PatientAdvocacy# #ELPA#

Different countries. Different journeys. One global voice for PSC.🌍 What does it really mean to live with Primary Sclerosing Cholangitis (PSC)? Behind every diagnosis is a person navigating uncertainty, making difficult decisions, adapting to everyday challenges and hoping for a better future. 🌍 This #PSCGlobalDay2026#, we are putting patients and their lived experiences at the heart of the conversation. 🎥 Over the coming days, hear directly from patients, families and caregivers around the world as they share their personal journeys — from diagnosis and daily life to transplantation, emotional wellbeing, treatment challenges and hopes for the future. 💬 Because patients are more than their diagnosis. Their experiences matter, their needs deserve to be understood, and their voices must be heard. Join us as we bring these voices together, raise awareness and remind the world that no one should face PSC alone. #PSCGlobalDay2026# #PSCawareness# #PatientVoices# #LivingWithPSC# #PatientCentredCare# #GlobalPSCCommunity# #ELPA# #PSCaware#

Seven years after his #AATD# diagnosis, Alberto discovered the condition was also affecting his #liver#. Alberto’s hope is that no one with #Alpha1# feels alone, and that every part of our health, lungs and liver, gets the attention it deserves. 💙 Full interview (English subtitles) 👇 #LiverHealth# #Alpha1Voices# #Alpha1Europe#

Understanding PSC: the why, the how and what comes next. Hear from Jean-Philippe from @PSCPartnersSkeeingACureCanada , who highlights the importance of helping people understand their diagnosis, what is known about the disease, how to manage it in the long term and how to navigate the challenges ahead. 💬 His message reminds us that knowledge empowers patients. Clear information, open communication and ongoing support are essential to helping people make informed decisions and live well with PSC. 🌍 Different countries, shared experiences, one global voice for PSC awareness. #PSCGlobalDay2026# #PSCawareness# #PatientEducation# #HealthLiteracy# #PatientVoices# #ELPA# European Liver Patients' Association

The power of community: no one should face PSC alone. Hear from Sarah from PSC Partners Seeking a Cure Canada, who highlights the importance of finding connection, understanding and support within the PSC community — especially for younger patients navigating life with a rare chronic disease. 💬 Her message reminds us that connecting with others who share similar experiences can make a real difference. A strong community provides not only information and support, but also a sense of belonging, encouragement and hope for the future. 🌍 Different countries, shared experiences, one global voice for PSC awareness. #PSCGlobalDay2026# #PSCawareness# #PowerOfCommunity# #YoungPatients# #PatientVoices# #ELPA# European Liver Patients' Association

Living with PSC is about more than a diagnosis — it's about being seen, heard and understood as a whole person. Hear from Mark from PSC Support , who highlights the importance of recognising the symptom burden of PSC and understanding how the disease affects each individual's daily life, wellbeing and quality of life. 💬 His message reminds us that patient-centred care means looking beyond clinical results, listening to lived experiences and recognising the full impact of the disease on the person behind the diagnosis. 🌍 Different countries, shared experiences, one global voice for PSC awareness. #PSCGlobalDay2026# #PSCawareness# #SymptomBurden# #PatientVoices# #PatientCentredCare# #ELPA# @AircsOdv

Different countries. Different journeys. One global voice for PSC.🌍 What does it really mean to live with Primary Sclerosing Cholangitis (PSC)? Behind every diagnosis is a person navigating uncertainty, making difficult decisions, adapting to everyday challenges and hoping for a better future. 🌍 This #PSCGlobalDay2026#, we are putting patients and their lived experiences at the heart of the conversation. 🎥 Over the coming days, hear directly from patients, families and caregivers around the world as they share their personal journeys — from diagnosis and daily life to transplantation, emotional wellbeing, treatment challenges and hopes for the future. 💬 Because patients are more than their diagnosis. Their experiences matter, their needs deserve to be understood, and their voices must be heard. Join us as we bring these voices together, raise awareness and remind the world that no one should face PSC alone. #PSCGlobalDay2026# #PSCawareness# #PatientVoices# #LivingWithPSC# #PatientCentredCare# #GlobalPSCCommunity# #ELPA# #PSCaware#

Madrid, 22 Oct. Carlos Fusté (IMIM) and Carina Dantas (SHINE 2Europe) attended the Diagnosis and Treatment Cluster meeting of the EU Mission on Cancer. We presented LIVERATION: 447 patients, 25 hospitals, 7 countries. On to 700! 💙 #LiverationEU# #EUCancerMission#

This review explores neural pathways linking the gut and liver, highlighting the autonomic nervous system as a potential target for understanding and treating metabolic liver disease. #GutLiverAxis# #AutonomicNervousSystem# #MetabolicHealth# #LiverDisease#

🇪🇺🎗️ LIVER CANCER AWARENESS MONTH 2026 LIVER CANCER: EUROPE CANNOT AFFORD TO WAIT UNTIL PREVENTION BECOMES TREATMENT. What if one of our greatest opportunities in cancer prevention is already within reach? The IARC/WHO figures reveal a devastating reality: 🌍 843,045 new liver cancer cases worldwide. 🌍 732,489 deaths worldwide. 🇪🇺 87,034 new cases in Europe. 🇪🇺 76,122 deaths in Europe. Annual deaths represent approximately 87% of new cases globally — not a patient survival rate, but a striking illustration of the disease burden. 🟠 AROUND 60% OF LIVER CANCER CASES WORLDWIDE MAY BE PREVENTABLE. According to the 2025 Lancet Commission, addressing modifiable risk factors could prevent approximately six in ten cases. This is a medical, economic and political responsibility. 🦠 Hepatitis B: vaccination and antiviral treatment. 🦠 Hepatitis C: curative treatment for most patients. 🦠 Hepatitis D: testing everyone with HBV and improving access to new therapies. 🧡 MASLD/MASH: earlier management of obesity, diabetes and metabolic risks. 🍷 Alcohol-related liver disease: prevention and timely, non-stigmatising care. 🧬 Rare liver diseases: early diagnosis, treatment and monitoring. 💶 THE COST OF INACTION IS ENORMOUS. An economic analysis cited by the European Commission estimated an annual liver cancer burden of €4 BILLION across 31 European countries based on 2018 data. Hospitalisations, imaging, surgery, transplantation, innovative medicines, monitoring, caregiving and lost productivity create enormous costs for patients, families and healthcare systems. 🔬 INNOVATION IS CHANGING THE FUTURE. Immunotherapies, targeted medicines and combination treatments are improving outcomes for eligible patients with advanced hepatocellular carcinoma (HCC) and Cholangiocarcinoma Early detection can also enable potentially curative treatments, including surgery, ablation and transplantation. But the greatest success is preventing cancer before it develops. ❤️ PREVENTION GOES BEYOND THE LIVER. Addressing obesity, diabetes, metabolic dysfunction and harmful alcohol consumption can also reduce cardiovascular, kidney and other health risks, including heart attacks and strokes. As MASLD/MASH becomes an increasingly important public health challenge, Europe needs integrated prevention rather than fragmented disease-specific approaches. 🇪🇺 FROM EUROPEAN POLICY TO ACTION. Europe's Beating Cancer Plan, the EU Safe Hearts Plan, EU4Health and European liver health initiatives must translate into accessible screening, early diagnosis, referral pathways and equitable treatment. Through the European Liver Screening Tour 2026 and European Liver Screening Week ELPA demonstrates how prevention and early risk identification can reach communities. But sustainable national programmes and political investment remain essential. @OliverVarhelyi @hans_kluge @WHO_Europe @EU_Health

🤝 Joining forces against alcohol harm at #UEGWeek#: UEG & @EASLnews​ presented the European Health Alliance on Alcohol (EHAA) with @escardio​, @ESPGHANSociety​, @WHO_Europe​ & @EuropeLiver​. Experts, policymakers & patients discussed what works, remaining gaps & next steps.

A Seat at the Table Is Not Enough. Patients Must Be Heard. At #UEGWeek2026# in Barcelona, Marko Korenjak, President of the European Liver Patients’ Association (#ELPA#), delivered a powerful message at the European Alcohol Policy Alliance (#EHAA#) session. Being in the room is not the same as being heard.” Meaningful patient involvement means more than participation. It requires stigma-free dialogue, early engagement, genuine listening and accountability — ensuring that patient experiences shape real decisions. From alcohol-related harm and liver disease prevention to research and public health policy, lived experience must become meaningful evidence that drives change. A seat at the table is only the beginning. The real impact comes when patients' voices change decisions. #ELPA# #UEGWeek2026# #PatientAdvocacy# #PatientVoice# #LiverHealth# #AlcoholPolicy# #PatientInvolvement# #Prevention# @UEGJournal

Out today in @NatureMedicine! "Waiting to Get Sick Enough" The liver can warn us of metabolic dysfunction long before serious consequences emerge. Why aren’t we listening? Full text access here: #SLDthinktank# #UEGweek# #LiverTwitter#