Different countries. Different journeys. One global voice for PSC.🌍 What does it really mean to live with Primary Sclerosing Cholangitis (PSC)? Behind every diagnosis is a person navigating uncertainty, making difficult decisions, adapting to everyday challenges and hoping for a better future. 🌍 This #PSCGlobalDay2026#, we are putting patients and their lived experiences at the heart of the conversation. 🎥 Over the coming days, hear directly from patients, families and caregivers around the world as they share their personal journeys — from diagnosis and daily life to transplantation, emotional wellbeing, treatment challenges and hopes for the future. 💬 Because patients are more than their diagnosis. Their experiences matter, their needs deserve to be understood, and their voices must be heard. Join us as we bring these voices together, raise awareness and remind the world that no one should face PSC alone. #PSCGlobalDay2026# #PSCawareness# #PatientVoices# #LivingWithPSC# #PatientCentredCare# #GlobalPSCCommunity# #ELPA# #PSCaware#

Understanding PSC: the why, the how and what comes next. Hear from Jean-Philippe from @PSCPartnersSkeeingACureCanada , who highlights the importance of helping people understand their diagnosis, what is known about the disease, how to manage it in the long term and how to navigate the challenges ahead. 💬 His message reminds us that knowledge empowers patients. Clear information, open communication and ongoing support are essential to helping people make informed decisions and live well with PSC. 🌍 Different countries, shared experiences, one global voice for PSC awareness. #PSCGlobalDay2026# #PSCawareness# #PatientEducation# #HealthLiteracy# #PatientVoices# #ELPA# European Liver Patients' Association

The power of community: no one should face PSC alone. Hear from Sarah from PSC Partners Seeking a Cure Canada, who highlights the importance of finding connection, understanding and support within the PSC community — especially for younger patients navigating life with a rare chronic disease. 💬 Her message reminds us that connecting with others who share similar experiences can make a real difference. A strong community provides not only information and support, but also a sense of belonging, encouragement and hope for the future. 🌍 Different countries, shared experiences, one global voice for PSC awareness. #PSCGlobalDay2026# #PSCawareness# #PowerOfCommunity# #YoungPatients# #PatientVoices# #ELPA# European Liver Patients' Association

Living with PSC is about more than a diagnosis — it's about being seen, heard and understood as a whole person. Hear from Mark from PSC Support , who highlights the importance of recognising the symptom burden of PSC and understanding how the disease affects each individual's daily life, wellbeing and quality of life. 💬 His message reminds us that patient-centred care means looking beyond clinical results, listening to lived experiences and recognising the full impact of the disease on the person behind the diagnosis. 🌍 Different countries, shared experiences, one global voice for PSC awareness. #PSCGlobalDay2026# #PSCawareness# #SymptomBurden# #PatientVoices# #PatientCentredCare# #ELPA# @AircsOdv

Different countries. Different journeys. One global voice for PSC.🌍 What does it really mean to live with Primary Sclerosing Cholangitis (PSC)? Behind every diagnosis is a person navigating uncertainty, making difficult decisions, adapting to everyday challenges and hoping for a better future. 🌍 This #PSCGlobalDay2026#, we are putting patients and their lived experiences at the heart of the conversation. 🎥 Over the coming days, hear directly from patients, families and caregivers around the world as they share their personal journeys — from diagnosis and daily life to transplantation, emotional wellbeing, treatment challenges and hopes for the future. 💬 Because patients are more than their diagnosis. Their experiences matter, their needs deserve to be understood, and their voices must be heard. Join us as we bring these voices together, raise awareness and remind the world that no one should face PSC alone. #PSCGlobalDay2026# #PSCawareness# #PatientVoices# #LivingWithPSC# #PatientCentredCare# #GlobalPSCCommunity# #ELPA# #PSCaware#

A Seat at the Table Is Not Enough. Patients Must Be Heard. At #UEGWeek2026# in Barcelona, Marko Korenjak, President of the European Liver Patients’ Association (#ELPA#), delivered a powerful message at the European Alcohol Policy Alliance (#EHAA#) session. Being in the room is not the same as being heard.” Meaningful patient involvement means more than participation. It requires stigma-free dialogue, early engagement, genuine listening and accountability — ensuring that patient experiences shape real decisions. From alcohol-related harm and liver disease prevention to research and public health policy, lived experience must become meaningful evidence that drives change. A seat at the table is only the beginning. The real impact comes when patients' voices change decisions. #ELPA# #UEGWeek2026# #PatientAdvocacy# #PatientVoice# #LiverHealth# #AlcoholPolicy# #PatientInvolvement# #Prevention# @UEGJournal

50 STATES. 50 DAYS. ONE POWERFUL PATIENT VOICE! 📣 📍 MICHIGAN - today is your day! 🎥 Meet Board Member/Ambassador Chef Oliver Hale! WATCH as he shares his story and why kidney patient voices matter. 🗳️ Election Day is Nov 3! Make a plan to VOTE!

Today, the Health Bill reaches its Second Reading in the House of Lords. Our new report sets out 7 principles to protect independent patient voice, give patients real influence over decisions and ensure decision-makers act on what they hear. Read more: