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Different countries. Different journeys. One global voice for PSC.🌍 What does it really mean to live with Primary Sclerosing Cholangitis (PSC)? Behind every diagnosis is a person navigating uncertainty, making difficult decisions, adapting to everyday challenges and hoping for a better future. 🌍 This #PSCGlobalDay2026#, we are putting patients and their lived experiences at the heart of the conversation. 🎥 Over the coming days, hear directly from patients, families and caregivers around the world as they share their personal journeys — from diagnosis and daily life to transplantation, emotional wellbeing, treatment challenges and hopes for the future. 💬 Because patients are more than their diagnosis. Their experiences matter, their needs deserve to be understood, and their voices must be heard. Join us as we bring these voices together, raise awareness and remind the world that no one should face PSC alone. #PSCGlobalDay2026# #PSCawareness# #PatientVoices# #LivingWithPSC# #PatientCentredCare# #GlobalPSCCommunity# #ELPA# #PSCaware#
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Living with PSC is about more than a diagnosis — it's about being seen, heard and understood as a whole person. Hear from Mark from PSC Support , who highlights the importance of recognising the symptom burden of PSC and understanding how the disease affects each individual's daily life, wellbeing and quality of life. 💬 His message reminds us that patient-centred care means looking beyond clinical results, listening to lived experiences and recognising the full impact of the disease on the person behind the diagnosis. 🌍 Different countries, shared experiences, one global voice for PSC awareness. #PSCGlobalDay2026# #PSCawareness# #SymptomBurden# #PatientVoices# #PatientCentredCare# #ELPA# @AircsOdv
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Different countries. Different journeys. One global voice for PSC.🌍 What does it really mean to live with Primary Sclerosing Cholangitis (PSC)? Behind every diagnosis is a person navigating uncertainty, making difficult decisions, adapting to everyday challenges and hoping for a better future. 🌍 This #PSCGlobalDay2026#, we are putting patients and their lived experiences at the heart of the conversation. 🎥 Over the coming days, hear directly from patients, families and caregivers around the world as they share their personal journeys — from diagnosis and daily life to transplantation, emotional wellbeing, treatment challenges and hopes for the future. 💬 Because patients are more than their diagnosis. Their experiences matter, their needs deserve to be understood, and their voices must be heard. Join us as we bring these voices together, raise awareness and remind the world that no one should face PSC alone. #PSCGlobalDay2026# #PSCawareness# #PatientVoices# #LivingWithPSC# #PatientCentredCare# #GlobalPSCCommunity# #ELPA# #PSCaware#
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