European Liver Patients' Association(@EuropeLiver):Living with PSC is about more than a diagnosis — it's about being seen, heard and understood as a whole person. Hear from Mark from PSC Support , who highlights the importance of recognising the symptom burden of PSC and understanding how the disease affects each individual's daily life, wellbeing and quality of life. 💬 His message reminds us that patient-centred care means looking beyond clinical results, listening to lived experiences and recognising the full impact of the disease on the person behind the diagnosis. 🌍 Different countries, shared experiences, one global voice for PSC awareness. #PSCGlobalDay2026 #PSCawareness #SymptomBurden #PatientVoices #PatientCentredCare #ELPA @AircsOdv

European Liver Patients' Association@EuropeLiver

2026.10.28 11:11

Living with PSC is about more than a diagnosis — it's about being seen, heard and understood as a whole person. Hear from Mark from PSC Support , who highlights the importance of recognising the symptom burden of PSC and understanding how the disease affects each individual's daily life, wellbeing and quality of life. 💬 His message reminds us that patient-centred care means looking beyond clinical results, listening to lived experiences and recognising the full impact of the disease on the person behind the diagnosis. 🌍 Different countries, shared experiences, one global voice for PSC awareness. #PSCGlobalDay2026# #PSCawareness# #SymptomBurden# #PatientVoices# #PatientCentredCare# #ELPA# @AircsOdv

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