Effie Parks
@OnceUponAGene
Rare Disease Advocate | Award Winning Podcaster | Speaker | Captain Connection | RareMama to my sweet, Ford, who lives with #CTNNB1# 🦓
4K Following 6.7K Followers
This beautiful 7-year-old girl is part of our rare disease community. She lives with CASK syndrome and was critically injured in the horrific shooting at Silver Rail Elementary School in Bend, Oregon.
She is currently in the hospital fighting for her life. Her family is facing an unimaginable situation and needs support right now.
If you’re able, please consider donating to help them through this time.
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